The Take a Pain Check Foundation: Building Resources for Young Adults with Rheumatic Disease

The transition from pediatric to adult care is a critical yet often overlooked part of a young patient’s healthcare journey, particularly for those with chronic conditions like juvenile idiopathic arthritis (JIA). Many healthcare providers fail to adequately prepare patients for this change, leading to challenges in continuity of care, preparedness and emotional well-being. Diagnosed at age 13, Natasha Trehan shares how unprepared she felt during this process and emphasizes the need for raising awareness and improving resources for smoother transitions.

Trehan, the founder and executive director of Take a Pain Check Foundation, a nonprofit organization created to empower young people living with rheumatic disease, stresses the importance of starting discussions about transition early in a patient’s diagnosis journey. She says doctors should introduce the concept of transition care, provide educational resources and facilitate early introductions to adult specialists.

Continuity of care is vital, ensuring patients feel supported on both the pediatric and adult sides. Unfortunately, she explains, many patients drop out of care during this transition due to logistical challenges, paperwork or life changes like moving to university. Supporting patients during this period can significantly improve long-term health outcomes.

Recognizing a lack of support systems for young people with rheumatic diseases, the Take a Pain Check Foundation began with a podcast to connect patients, but its growth now includes multiple initiatives, such as scholarships; ergonomic backpacks for newly diagnosed teenagers; and workshops focused on education, workplace support and accommodations. The foundation also provides leadership opportunities, support groups and ambassador programs to help young adults feel empowered and supported.

The foundation creates a space where young people can connect, learn and advocate for themselves, ensuring that their voices are heard. Programs are tailored to give young patients the tools they need to thrive while managing their health. By raising awareness about transition care and providing tangible resources, Trehan hopes to inspire healthcare professionals to better support patients and empower young individuals to take charge of their healthcare journeys.